Some weeks have passed since I wrote the last sentence but I still want to talk about Dominique. In the interim we just completed her sixth and certainly last scheduled cycle of Chemo (infusion, which almost for sure makes her feel better, and a cycle of Temodal which almost for sure does not). Now, 4 weeks for the poison to do it’s job, a final MRI, and a consultation are in the offing. She thinks, and she is probably right, that Dr. Simon will suggest a continuation, perhaps with modifications, of the basic protocol. At any rate Phase 3 will be more or less complete, and that is what I signed on for. It is a good place to take stock, to review the last harrowing year, and to ponder the future.
First the great news – we had a year. In the beginning it appeared that we might have only weeks, or perhaps, if lucky, a few months of decline in front of us. Decline from the depths. At the onset gibberish and a horribly malfunctioning medical establishment. Soon dire forecasts and horrific headlines – be wary, ever so wary, of reading the literature. Bleakness and blackness, chaos and confusion, but tiny specks of bravery. Slowly, ever so slowly, Dominique started to fight. She is a magnificent animal when she marshals her will. She did it with her children for 25, 30 years, 10 years ago she did it with herself, and now she started to dig deep again. Inch by inch she inched herself up. In the end we had a year, no guarantees, but a year of some sort of progress. Of course it is true that the progress may be more apparent than actual, chemical than constituent – but it was a year and that was the goal.
Now we need an MRI and a prognosis. Something solid. A reason and a plan. Do we have seven weeks, seven months or seven years? At least today we don’t feel compelled to include seven days, though in January we might have. Just today my love spoke of the possibility of 15 years – feasible or filament? Should we conserve strength or live life? She’s fluttering and nearly flying again. It’s what she asked for. It’s as close as I can give to what she sought. I feel very certain I don’t have 15 years, and most probably not even 5. Five months may be closer to the mark. At any rate the balance is redressed – the odds are I’ll go first, and that pleases me.
28/04/2008 / October 11, 2007 / A Progress Report ? / Minou / Mixed / AFW, 702, © 2007 / CIP / SHE